Improvement of quality of life for informal caregivers of dependent persons through educational workshops
Abstract
Introduction: The ageing of the population is associated with an increase in the number of dependent people, with an estimate of 15% living with a disability. The provision of care to family members entails an added responsibility associated with care-related problems, which can have a negative impact on caregivers. Therefore, we propose to design and evaluate a caregiving programme based on caregiver education, measuring knowledge, pain perception, emotional burden and health-related quality of life.
Objective: The main objective is to improve the quality of life of informal caregivers through training interventions, in order to decrease the disability caused by caregiving tasks.
Method: 99 caregivers belonging to the Aljarafe-Northern Seville Primary Care Health District participated, divided into control and intervention groups. We designed two educational workshops on care programmes for informal caregivers. They completed a knowledge questionnaire, and different validated scales related to pain, health states and quality of life.
Results: Most of the caregivers presented back problems, for which they received pharmaceutical treatment. The implemented intervention was associated with a decrease in pain during basic activities of daily living, care and rest, as well as a reduction in strain index in both groups.
Conclusions: Intervention programmes for informal carers of dependent patients are effective in improving the state of health and quality of life of this group, and their implementation should therefore be encouraged in primary care.
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References
World Health Organization (WHO). Envejecimiento y salud [Internet]. World Health Organization. Ginebra, Suiza: WHO Press, World Health Organization; 2018 [cited 2018 Mar 12]. Available from: https://www.who.int/es/news-room/fact-sheets/detail/envejecimiento-y-salud
Pimouguet C, Lavaud T, Dartigues JF, Helmer C. Dementia case management effectiveness on health care costs and resource utilization: a systematic review of randomized controlled trials. J Nutr Health Aging [Internet]. 2010 Oct;14(8):669–76. Available from: https://link.springer.com/content/pdf/10.1007/s12603-010-0314-4.pdf
Toribio-Díaz ME, Medrano-Martínez V, Moltó-Jordá JM, Beltrán-Blasco I. Red de cuidadores informales de los pacientes con demencia en la provincia de Alicante, descripción de sus características. Neurologia [Internet]. 2013;28(2):95–102. Available from: http://dx.doi.org/10.1016/j.nrl.2012.03.010
Garcia-Calvente M del M, Mateo-Rodriguez I, Maroto-Navarro G. El impacto de cuidar en la salud y la calidad de vida de las mujeres. Gac Sanit [Internet]. 2004;18 Suppl 2:83–92. Available from: https://doi.org/10.1157/13061998
Bocca Peralta G, Iglesias B A, Maridueña Arciniegas V. Dolor lumbar inespecífico en cuidadores de niños con discpacidad. Rev Mex Med Fis Rehab [Internet]. 2017;29(3–4):42–5. Available from: www.medigraphic.org.mx
Seira Lledós MP, Aller Blanco A, Calvo Gascón A. Morbilidad sentida y diagnosticada en cuidadores de pacientes inmovilizados de una zona de salud rural. Rev Esp Salud Publica [Internet]. 2002;76(6):713–21. Available from: https://www.mscbs.gob.es/biblioPublic/publicaciones/recursos_propios/resp/revista_cdrom/vol76/vol76_6/RS766C_713.pdf
Zuluaga Viscaya KA, Estrada Muñoz J. Evaluación del riesgo de patologías lumbares en cuidadores familiares de pacientes hospitalizados en casa con algún grado de dependencia por alteración de la movilidad utilizando el método MAPO. Rev Ing Ind [Internet]. 2019;6(6):9–16. Available from: https://repository.upb.edu.co/bitstream/handle/20.500.11912/6595/Evaluación del riesgo de patologías.pdf?sequence=1&isAllowed=y
Yalcinkaya EY, Önes K, Ayna AB, Turkyilmaz AK, Erden N. Low back pain prevalence and characteristics in caregivers of stroke patients: A pilot study. Top Stroke Rehabil [Internet]. 2010;17(5):389–93. Available from: https://www.tandfonline.com/doi/abs/10.1310/tsr1705-389
Bardak AN, Erhan B, Gündüz B. Low back pain among caregivers of spinal cord injured patients. J Rehabil Med [Internet]. 2012;44(10):858–61. Available from: https://www.medicaljournals.se/jrm/content/abstract/10.2340/16501977-1043
de Araujo Freitas Moreira KL, Abalos-Medina GM, Villaverde-Gutierrez C, Gomes de Lucena NM, Belmont Correia de Oliveira A, Perez-Marmol JM. Effectiveness of two home ergonomic programs in reducing pain and enhancing quality of life in informal caregivers of post-stroke patients: A pilot randomized controlled clinical trial. Disabil Health J [Internet]. 2018 Jul;11(3):471–7. Available from: https://www.sciencedirect.com/science/article/abs/pii/S1936657418300049?via%3Dihub
Downie WW, Leatham PA, Rhind VM, Wright V, Branco JA, Anderson JA. Studies with pain rating scales. Ann Rheum Dis. 1978;37(4):378–81.
Lázaro C, Torrubia R, Baños JE. El cuestionario de dolor de McGill. Dolor Investig Clínica Ter [Internet]. 2007;22(2):69–77. Available from: http://www.dolor.es
Lázaro C, Caseras X, Whizar-Lugo VM, Wenk R, Baldioceda F, Bernal R, et al. Psychometric properties of a Spanish version of the Mcgill Pain Questionnaire in several Spanish-speaking countries. Clin J Pain. 2001;17(4):365–74.
López AS, Moral SM. Validación del Indice de Esfuerzo del Cuidador en la población española [Validation of the Caregiver Strain Index in Spanish population]. Enferm Comunitaria. 2005;1(May):12–7.
Herdman M, Badia X, Berra S. El EuroQol-5D: una alternativa sencilla para la medición de la calidad de vida relacionada con la salud en atención primaria. Atención Primaria. 2001;28(6):425–9.
Badia X, Roset M, Montserrat S, Herdman M, Segura A. La version espanola del Euro-QoL : descripcion y aplicaciones. Med Clin (Barc). 1999;112 Suppl:79–85.
Rodríguez Chamorro MÁ, García-Jiménez E, Amariles P, Rodríguez Chamorro A, José Faus M. Revisión de tests de medición del cumplimiento terapéutico utilizados en la práctica clínica. Aten Primaria. 2008;40(8):413–7.
Morisky DE, Green LW, Levine DM. Concurrent and predictive validity of a self-reported measure of medication adherence. Med Care. 1986 Jan;24(1):67–74.
Piñeiro I, Rodríguez S, Albite A, Freire C, Ferradás M del M. Sobrecarga y salud percibida en cuidadores informales de pacientes con enfermedad mental. Eur J Heal Res [Internet]. 2017 Dec 12;3(3):185–96. Available from: https://formacionasunivep.com/ejhr/index.php/journal/article/view/75
Ortiz-Mallasen V, Trullenque-Vicario J, Claramonte-Gual E. Dolor de espalda en cuidadores no profesionales de personas adultas dependientes: Estudio descriptivo. ICUE Investig y Cuid Enfermería [Internet]. 2016 Jan 11;1(3):12. Available from: http://www.revistaicue.es/revista/ojs/index.php/ICUE/article/view/34
Gómez-Ramos M, González-Valverde F. El cuidador del paciente con demencia: aplicación del test Índice del Esfuerzo del Cuidador. Rev Esp Geriatr Gerontol [Internet]. 2004;39(3):154–9. Available from: https://www.sciencedirect.com/science/article/pii/S0211139X04749495?casa_token=fNg2k09l6YsAAAAA:X8OHq3xS2h-6ABZ01s2g8sHx7T7N7M6MJDYkiwne0hkYSZZwcXRD0hOdM57gcDvxUdHdIHPO5A
Crespo López M, López Martínez J. El estrés en cuidadores de mayores dependientes. Cuidarse para cuidar. Madrid, España: Pirámide Ediciones; 2007. 280 p.
Badia Llach X, Lara Suriñach N, Roset Gamisans M. Calidad de vida, tiempo de dedicación y carga percibida por el cuidador principal informal del enfermo de Alzheimer. Atención Primaria [Internet]. 2004;34(4):170–7. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7668642/pdf/main.pdf
Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist [Internet]. 1980 Dec;20(6):649–55. Available from: https://pubmed.ncbi.nlm.nih.gov/7203086
Hernández Rojas EM, Murillo Álvarez S, Solano Bastos A, Enríquez-Reyna MC. Riesgo de alteraciones músculo-esqueléticas en cuidadores informales de personas con parálisis cerebral. Rev Psicol del Deport [Internet]. 2017;26(2):107–12. Available from: https://www.redalyc.org/pdf/2351/235152045015.pdf
Ortiz Mallasen V. Estudio experimental sobre la eficacia de una intervención educativa individual en el dolor lumbar de cuidadores no profesionales de personas dependientes. Programa TRANSFE [Internet]. [Castelló de la Plana]: Universitat Jaume I; 2019 [cited 2020 Sep 17]. Available from: http://hdl.handle.net/10803/667826
Villarejo Aguilar L, Zamora Peña M, Casado Ponce G. Sobrecarga y dolor percibido en cuidadoras de ancianos dependientes. Enferm Glob [Internet]. 2012;27:159–65. Available from: https://revistas.um.es/eglobal/article/view/eglobal.11.3.155111/136241
Casal Rodríguez B, Rivera Castiñeira B, Currais Nunes L. [Alzheimer’s disease and the quality of life of the informal caregiver]. Rev Esp Geriatr Gerontol [Internet]. 2019;54(2):81–7. Available from: https://www.elsevier.es/es-revista-revista-espanola-geriatria-gerontologia-124-pdf-S0211139X18306905
Losada-Baltar A, Peñacoba-Puente C, Marquez-Gonzalez M, Cigaran-Mendez M. Cuidar cuidándose, evaluación e intervención interdisciplinar con cuidadores familiares de personas con demencia. Madrid, España Encuentro, Caja Madrid. 2008;
Manso Martínez ME, Sánchez López M del P, Cuéllar Flores I. Salud y sobrecarga percibida en personas cuidadoras familiares de una zona rural. Clin y Salud [Internet]. 2013;24(1):37–45. Available from: https://reader.elsevier.com/reader/sd/pii/S1130527413700057?token=7DF5FEC3D4333BDF2DC12AAD0FB80686DDA6F95DD0F48D1DA28B871F324C9261D20856175FF0D62B50F1BE1494DA3592&originRegion=eu-west-1&originCreation=20210427102832
González-Pisano AC, Granado-Villacé R, García-Jáñez E, del Cano-González C, Fernández-Fernández MI. Calidad de vida relacionada con la salud en cuidadoras de personas dependientes de dos zonas rurales de León. Enferm Clin [Internet]. 2009;19(5):249–57. Available from: https://www.elsevier.es/es-revista-enfermeria-clinica-35-linkresolver-calidad-vida-relacionada-con-salud-S1130862109001351
Bezerra Ribeiro S, Gatto Cárdia MC, Almeida LC. Biomechanical and organizational risk and prevalence of low back pain in the old adults caregivers of a nursing home in Joao Pessoa/PB. Work [Internet]. 2012;41(Suppl.1):1933–9. Available from: Biomechanical and organizational risk and prevalence of low back pain in the old adults caregivers of a nursing home
Larrañaga I, Martín U, Bacigalupe A, María Begiristáin J, José Valderrama M, Arregi B. Impacto del cuidado informal en la salud y la calidad de vida de las personas cuidadoras: análisis de las desigualdades de género. Gac Sanit [Internet]. 2008;22(5):443–50. Available from: http://dx.doi.org/10.1157/13126925
López J, Crespo M. Intervenciones con cuidadores de familiares mayores dependientes: Una revisión. = Interventions for caregivers of older and dependent adults: A review. Psicothema [Internet]. 2007;19(1):72–80. Available from: http://ezproxy.msvu.ca/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=psyh&AN=2007-01207-011&site=ehost-live&scope=site%0Ahttp://mcrespo@psi.ucm.es
Moreno Rodríguez R, Cigarán M, Peñacoba Puente C, Montorio Cerrato IM, Losada Baltar A. Análisis de programas de intervención psicosocial en cuidadores de pacientes con demencia. Inf psiquiátricas [Internet]. 2006;(184):173–86. Available from: http://www.informacionespsiquiatricas.com/anteriores/info_2006/02_184_08.htm
Torres Egea MP, Ballesteros Pérez E, Sánchez Castillo PD. Programas e intervenciones de apoyo a los cuidadores informales en España. Gerokomos [Internet]. 2008;19(1):9–15. Available from: http://scielo.isciii.es/pdf/geroko/v19n1/rincon1.pdf
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