From the concept of Independence to the questioning of its use in practice: scoping review
Abstract
Background: Independence is a widely used concept by the most practical areas of health knowledge, being essential to know its real meaning for subsequent application.
Method: Scoping review based on the recommended principles by Joanna Briggs Institute and by the conceptual analysis method from Walker and Avant. Careful research was realized in the databases: Scopus, CINAHL complete, and MEDLINE. Two independent reviewers evaluate the relevance of the articles' understudy, the extraction, and article synthesis.
Results: One hundred and two articles were included, after the application of the inclusion criteria. The majority of the authors define independence as the physical capacity for self-care and for the realization of the daily activities. Other authors, confuse independence with autonomy, referring to independence as the cognitive capacity, financial capacity, social capacity, and decision capacity.
Conclusions: Independence includes the ability to perform self-care and daily living activities.
Downloads
References
Oberstadt MCF, Esser P, Classen J, Mehnert A. Alleviation of psychological distress and the improvement of quality of life in patients with amyotrophic lateral sclerosis: Adaptation of a short-term psychotherapeutic intervention. Frontiers in Neurology. 2018;9(APR).
XXX. O conceito multidimensional de autonomia: uma análise conceptual recorrendo a uma scoping review (in press). Revista Referência. 2020.
Casado da Rocha A. Narrative autonomy: three literary models of healthcare in the end of life. Camb Q Healthc Ethics. 2014;23(2):200-8.
Anakin M, Jouart M, Timmermans J, Pinnock R. Student experiences of learning clinical reasoning. Clinical Teacher. 2020;17(1):52-7.
Bentwich ME, Dickman N, Oberman A. Human dignity and autonomy in the care for patients with dementia: differences among formal caretakers from various cultural backgrounds. Ethnicity & Health. 2018;23(2):121-41.
Watson j. Enfermagem: ciência humanas e cuidar - uma teoria de enfermagem. Loures2002. 182 p. p.
Sousa L, Firmino CF, Carteiro DMH, Frade F, Marques JM, Antunes AV. Análise de conceito: conceitos, métodos e aplicações em enfermagem. 2018.
Pearson A, Wiechula R, Court A, Lockwood C. The JBI model of evidence‐based healthcare. International Journal of Evidence‐Based Healthcare. 2005;3(8):207-15.
Peters M, Godfrey C, McInerney P, Soares C, Khalil H, Parker D. The Joanna Briggs Institute reviewers' manual 2015: methodology for JBI scoping reviews. 2015.
Sousa L, Marques-Vieira C, Severino S, Antunes V. Metodologia de revisão integrativa da literatura em enfermagem. 2017.
Lafont C, Gérard S, Voisin T, Pahor M, Vellas B. Reducing 'iatrogenic disability' in the hospitalized frail elderly. Journal of Nutrition, Health & Aging. 2011;15(8):645-60.
Almukainzi M, Almuhareb A, Aldwisan F, Alquaydhib W. Medication use patterns in the visually impaired in Saudi Arabia and the importance of applying Braille labeling. Saudi Pharmaceutical Journal. 2020;28(3):274-80.
Jacobs G. Patient autonomy in home care: Nurses’ relational practices of responsibility. Nursing Ethics. 2019;26(6):1638-53.
de Rementeria A. How to grow up or (nearly) die trying: developing trust in one’s own capacity for growth. Journal of Child Psychotherapy. 2017;43(1):66-82.
Larkin M, Unwin G, Iyer M, Tsimopoulou I, Zahid S, Malik K, et al. Cultural affordance, social relationships, and narratives of independence: Understanding the meaning of social care for adults with intellectual disabilities from minority ethnic groups in the UK. International Journal of Developmental Disabilities. 2018;64(3):195-203.
Methley AM, Mutch K, Moore P, Jacob A. Development of a patient-centred conceptual framework of health-related quality of life in neuromyelitis optica: a qualitative study. Health Expectations. 2017;20(1):47-58.
Millar AN, Hughes CM, Ryan C. "It's very complicated": a qualitative study of medicines management in intermediate care facilities in Northern Ireland. BMC Health Serv Res. 2015;15:216.
Durocher E, Kinsella EA, Gibson BE, Rappolt S, Ells C. Engaging older adults in discharge planning: case studies illuminating approaches adopted by family members that promote relational autonomy. Disability & Rehabilitation. 2019;41(25):3005-15.
Watabe T, Suzuki H, Konuki Y, Aoki K, Nagashima J, Sako R. Beneficial falls in stroke patients: evaluation using a mixed method design. Topics in Stroke Rehabilitation. 2018;25(2):137-44.
Benoot C, Deschepper R, Saelaert M, Grypdonck M, Bilsen J. Informal support needs of cancer patients who are living alone: a qualitative insight. Psychooncology. 2015;24(9):1066-72.
Titus LC, Miller Polgar J. Reasons for using power tilt: perspectives from clients and therapists. Disabil Rehabil Assist Technol. 2018;13(2):132-9.
Kisala PA, Tulsky DS, Boulton AJ, Heinemann AW, Victorson D, Sherer M, et al. Development and Psychometric Characteristics of the TBI-QOL Independence Item Bank and Short Form and the TBI-QOL Asking for Help Scale. Archives of Physical Medicine & Rehabilitation. 2020;101(1):33-42.
Soares FA, Silva TR, Gomes DP, Pereira ET. A contribuição da estimulação psicomotora para o processo de independência do deficiente visual. The contribution of a psychomotor stimulation to the process of independence for a visually impaired. 2012;8(4):16-25.
Löve L, Traustadóttir R, Rice JG. Trading autonomy for services: Perceptions of users and providers of services for disabled people in Iceland. Alter. 2018;12(4):193-207.
Somerville AC, Tanner AM, Weatherburn DL, Dillon A. Continuity of Care in Tertiary Paediatric Rehabilitation: Implications for Social Work Practice. International Journal of Integrated Care (IJIC). 2018;18:1-2.
Asghari M, Behzadipour S, Taghizadeh G. A planar neuro-musculoskeletal arm model in post-stroke patients. Biol Cybern. 2018;112(5):483-94.
Smania N, Geroin C, Valè N, Gandolfi M. The end-effector device for gait rehabilitation. Biosystems and Biorobotics2018. p. 267-83.
Devisch I, Vanheule S. Singularity and medicine: Is there a place for heteronomy in medical ethics? Journal of Evaluation in Clinical Practice. 2014;20(6):965-9.
Aronow HU, Sharkey P, Siebens HC, Horn SD, Smout RJ, DeJong G, et al. Initial recovery trajectories among patients with hip fracture: a conceptual approach to exploring comparative effectiveness in postacute care. Pm r. 2012;4(4):264-72.
Lima AMN, Ferreira MSM, Fernandes CS. Influência dos cuidados de enfermagem de reabilitação na recuperação da independência funcional do paciente/Influence of rehabilitation nursing care on the recovery of functional independence of the patient/Influencia de los cuidados de. JOURNAL HEALTH NPEPS. 2019;4(2):28-43.
The works published in this magazine are subject to the following terms:
1. The Publications Service of the University of Murcia (the publisher) preserves the copyright of the published works, and encourages and allows the reuse of the works under the license for use stated in point 2.
© Servicio de Publicaciones, Universidad de Murcia, 2011 (© Publications Service, University of Murcia, 2011)
2. The works are published in the electronic edition of the journal under Creative Commons Reconocimiento-NoComercial-SinObraDerivada 3.0 España(texto legal) “ a Attribution-NonCommercial-NoDerivatives 3.0 Spain license (legal text)”. They can be copied, used, broadcasted, transmitted and publicly displayed, provided that: i) the authorship and original source of their publication (journal, publisher and URL) are cited; (ii) are not used for commercial purposes; iii) the existence and specifications of this license is mentioned.
3. Conditions of self-archiving. Authors are allowed and encouraged to electronically disseminate the pre-print (pre-reviewed ) and / or post-print (reviewed and accepted for publication) versions of their works prior to publication, as it ensures a wider circulation and dissemination which may lead to a possible increase in its mention and a higher scope among the academic community. RoMEO color: green.