Quality of life of people with hansen’s disease assisted in a reference hospital, Paraíba-Brazil

Authors

  • Cibelly Nunes Fortunato Universidade Federal da Paraíba
  • Ana Cristina Oliveira e Silva Federal University of Paraiba
  • Micheline da Silveira Mendes Municipal Health Department of João Pessoa. Paraíba, Brazil
  • Sérgio Vital da Silva Júnior Federal University of Paraíba
  • Allan Batista Silva Federal University of Paraíba
  • Maria Eliane Moreira Freire Federal University of Paraíba
DOI: https://doi.org/10.6018/eglobal.18.4.342601
Keywords: Hansen’s disease, Quality of life, Nursing

Abstract

Objective: Evaluate the degree of impairment of the quality of life of people with Hansen’s disease, according to social demographic and clinical variables
Method: Descriptive, transversal, quantitative study, involving 45 patients from a reference hospital located in João Pessoa, Paraíba, Brazil. For obtaining data, interviews were performed based on a semi-structured questionnaire, including social demographic and clinic variables of the participants; to evaluate their life quality the instrument Dermatology Life Quality Index, was used, after approval in the Committee of Ethics in Research of the Federal University of Paraíba. In the data analysis, the non-parametric Test of the Chi-square of Pearson was used with level of significance of 5% (p<0,05), being used the Yates correction continuity, when necessary.
Results: It is highlighted a prevalence of male, brown, single, aged 18 to 40 individuals, with family income lower than three minimum salaries and low schooling. From this total, 88,9% presented the clinical multibacillary form of the Hansen’s disease and 60% of them, with level of impairment of quality of life varying between moderate and very serious, according to scores of the instrument used.
Conclusion: It is reassured the important impact of the Hansen’s disease in the quality of life of their carriers, as indicated by the high scores obtained in the application of the DLQI.

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Author Biographies

Ana Cristina Oliveira e Silva, Federal University of Paraiba

Nurse. PhD in Nursing. Adjunct Professor, Department of Clinical Nursing and Graduate Program in Nursing, Health Sciences Center, Federal University of Paraíba. Leader of the Group of Studies and Research in Infectious Diseases and Quality of Life of the Federal University of Paraíba. João Pessoa, Paraíba, Brazil.

Micheline da Silveira Mendes, Municipal Health Department of João Pessoa. Paraíba, Brazil

Nurse. Specialist in Dermatology and Stomatherapy - Faculdade Santo Augusto - Rio Grande do Sul Brazil. Graduate student - Master in Public Health from the Oswaldo Cruz Foundation, Recife, Pernambuco. Technical Advisor in the Coordination of Leprosy and Tuberculosis at the Municipal Health Department of João Pessoa, Paraíba, Brazil. Nurse at the Hospital for Infectious Diseases Dr. Clementino Fraga, João Pessoa, Paraíba, Brazil.

Sérgio Vital da Silva Júnior, Federal University of Paraíba

Nurse. Teacher of the Master's course in the Post-Graduation Program in Nursing of the Center of Health Sciences of the Federal University of Paraíba. Member of the Nucleus of Studies and Research in Bioethics and Palliative Care of the Federal University of Paraíba. João Pessoa, Paraíba, Brazil.

Allan Batista Silva, Federal University of Paraíba

Nurse. Student of the Master course in the Postgraduate Program in Decision and Health Models of the Federal University of Paraíba. João Pessoa, Paraíba, Brazil

Maria Eliane Moreira Freire, Federal University of Paraíba

Nurse. PhD in Nursing. Adjunct Professor, Department of Clinical Nursing and Graduate Program in Nursing, Health Sciences Center, Federal University of Paraíba. Vice-leader of the Group of Studies and Research in Infectious Diseases and Quality of Life, Federal University of Paraíba. Nurse at Lauro Wanderley University Hospital. João Pessoa, Paraíba, Brazil

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Published
16-09-2019
How to Cite
[1]
Nunes Fortunato, C. et al. 2019. Quality of life of people with hansen’s disease assisted in a reference hospital, Paraíba-Brazil. Global Nursing. 18, 4 (Sep. 2019), 119–158. DOI:https://doi.org/10.6018/eglobal.18.4.342601.
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Section
ORIGINAL RESEARCH