Caregiving people with dementia: positive responses experienced by spouses
Abstract
Primary Goal: The purpose of this study was to determine the positive response experienced by spouse cargiving their partner with dementia. The role of the spouse as a caregiver for people with dementia is known to have significant effects than the role of other family members. Spouse’s acceptance as caregivers for people with dementia can affect the quality of services provided.
Methods: This research using a qualitative study with a phenomenological approach to 10 participants obtained using a purposive sampling technique.
Results: The results showed that the positive response of the caregivers while caring for a spouse with dementia was seen through feelings of gratitude for the blessings received, acceptance to the conditions experienced, and the feeling of closeness as partner.
Conclusions: Positive responses that appear in spouses who are caregivers can be an entry point for health workers to improve the welfare of spouses as caregivers.
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References
Allender J, Rector C, Warner K. Community & Public Health Nursing: Promoting the Public’s Health Eighth, North American Edition. Eight Edit. Wolters Kluwer| Lippincott Williams & Wilkins; 2014.
Wallace M. Essentials of Gerontological Nursing. Vol. 18, Geriatric Nursing. 2008. 184-185 p.
Pradana AA. Demensia pada Pasangan Lansia. 1st ed. Depok: Infermia Publishing; 2021. 166 p.
Miller CA. Nursing for Wellness in Older Adults: Sixth Edition. 6th ed. Philadelphia: Wolters Kluwer| Lippincott Williams & Wilkins; 2012. 636 p.
C.-Y. Chiao, Wu S, Hsiao C-Y. Caregiver burden for informal caregivers of patients with dementia : A systematic review. Int Nurs Rev. 2015;62(110):340–50.
Pinquart M, Sörensen S. Spouses , Adult Children , and Children-in-Law as Caregivers of Older Adults : A Meta-Analytic Comparison. J Psychol Aging. 2011;26(1):1–14.
Rigby T, Johnson DK, Galvin JE. DIFFERENCES IN CAREGIVER GRIEF AND BURDEN AMONG DEMENTIA WITH LEWY BODIES, DEMENTIA OF THE ALZHEIMER’S TYPE, AND DEMENTIA ASSOCIATED WITH PARKINSON’S DISEASE. Alzheimer’s Dement [Internet]. 2018;14(7):P1322–3. Available from: https://doi.org/10.1016/j.jalz.2018.06.1887
Peacock S, Forbes D, Markle-reid M, Hawranik P, Morgan D, Jansen L, et al. The Positive Aspects of the Caregiving Journey With Dementia : Using a Strengths-Based Perspective to Reveal Opportunities. J Appl Gerontol. 2010;29(5):640–59.
Roth DL, Dilworth-anderson P, Huang J, Gross AL, Gitlin LN. Positive Aspects of Family Caregiving for Dementia : Differential Item Functioning by Race. Journals Gerontol. 2015;0(0):1–7.
Yu DSF, Cheng S, Wang J. Unravelling positive aspects of caregiving in dementia : An integrative review of research literature. Int J Nurs Stud [Internet]. 2018;79(October 2017):1–26. Available from: http://dx.doi.org/10.1016/j.ijnurstu.2017.10.008
Bielsten T, Lasrado R, Keady J, Kullberg A, Hellström I. Living Life and Doing Things Together : Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia. Qual Health Res. 2018;0(0).
Riley GA, Evans L, Oyebode JR. Relationship continuity and emotional well-being in spouses of people with dementia dementia. Aging Ment Heal ISSN [Internet]. 2016;7863(November):299–305. Available from: http://dx.doi.org/10.1080/13607863.2016.1248896
Jang H, Yi M. Hermeneutic Phenomenological Study on Caring Experience of Spouses of Elderly People with. J Korean Acad Nurses. 2017;47(3):367–79.
Bjørge H, Sæteren B, Ulstein ID. Experience of companionship among family caregivers of persons with dementia : A qualitative study. Dementia. 2019;18(1):1–17.
Wadham O, Simpson J, Rust J, Murray C. Couples â€TM shared experiences of dementia : a meta- synthesis of the impact upon relationships and couplehood. J Aging Ment Heal. 2015;1–12.
Shim B, Barroso J, Davis LL. International Journal of Nursing Studies A comparative qualitative analysis of stories of spousal caregivers of people with dementia : Negative , ambivalent , and positive experiences. Int J Nurs Stud [Internet]. 2012;49(2):220–9. Available from: http://dx.doi.org/10.1016/j.ijnurstu.2011.09.003
Friedman MR, Bowden VR, Jones E. Family Nursing: Research, Theory, and Practice (5th Edition). 5th ed. Pearson Education; 2010. 744 p.
Braun M, Mura K, Peter-Wight M, Hornung R, Scholz U. Toward a Better Understanding of Psychological Well-Being in Dementia Caregivers: The Link Between Marital Communication and Depression. Fam Process. 2010;49(2):185–203.
Merrick K, Camic PM, Shaughnessy MO. Couples constructing their experiences of dementia : A relational perspective. Dementia. 2013;0(0):1–17.
Conway ER, Watson B, Tatangelo G, Mccabe M. Is it all bleak? A systematic reviewof factors contributing to relationship change in dementia. Int Psychogeriatrics. 2018;(May).
Clare L, Nelis SM, Whitaker CJ, Martyr A, Markova IS, Roth I, et al. Marital Relationship Quality in Early-Stage Dementia Perspectives From People With Dementia and Their Spouses. Alzheimer’s Dis Assoc Disord. 2012;26(2):148–58.
Pradana AA, Sahar J, Permatasari H. Dementia: How does spouse perceive it? Enfermería Clínica [Internet]. 2021;31(Supplement 2):S16–9. Available from: https://www.sciencedirect.com/science/article/abs/pii/S1130862120305040
Pradana AA. Social Capital as a Determinant of Health in Older Adults: A Narrative Review. KnE Life Sci. 2022;1:1–11.
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