Quantum Caring for Parents: Translation and Adaptation of a Mobile Application into Portuguese

Authors

DOI: https://doi.org/10.6018/eglobal.464751
Keywords: Neonatology; Nursing; Parents; Health Education; Validation Studies; Health Literacy.

Abstract

Objective: Translate and adapt the Quantum Care for Parents- Neonatal Intensive Care Unit mobile application to Portuguese language and culture.
Method: Methodological study that covered the stages of translation, synthesis of translations, retroversion, synthesis of retroversions, evaluation by 20 neonatology experts to validate content, and pilot test applied to 20 Portuguese parents with children hospitalized in the neonatology unit. The content validity was supported by the Lawshe Model and for the lexicographic analysis of the content of the experts' suggestions, the IRaMuTeQ software was used.
Results: The evaluation criteria were semantic, cultural and conceptual equivalence between the original app and the translation. Content validity was good for the number of experts. The following classes emerged from the lexicographic analysis of the suggestions: Adequacy of information, Availability of Information to parents, Simplification of Information and Facilitation of Usability. In the pilot test, all items were classified as clear.
Conclusion: The mobile application showed validity of content indicative of good adaptation to the Portuguese language and culture and, after the introduction of the experts' suggestions and pilot test, it is considered a good resource to support health education and parental health literacy in the unit neonatology.

Downloads

Download data is not yet available.

References

Lean RE, Paul RA. NICU Hospitalization : Long Term Implications on Parenting and Child Behaviors. Curr Treat Options Peds [Internet].2018 [citado en 2019 Jun. 20];4(1):49–69. Disponible en: https://doi:10.1007/s40746-018-0112-5.

Meleis AI. Transitions theory : middle-range and situation-specific theories in nursing research and practice. New York: Springer Pub. Co; 2010.

Gooding JS, Cooper LG, Blaine AI, Franck LS, Howse JL, Berns SD. Family Support and Intensive Care Unit : Origins , Advances , Impact. Semin Perinato.l [Internet].2011 [citado en 2019 Jun. 20];35(1):20–8. Disponible en: https://doi.org/10.1053/j.semperi.2010.10.004.

Celenza JF, Zayack D, Buus-Frank ME, Horbar JD. Family Involvement in Quality Improvement: From Bedside Advocate to System Advisor. Clin Perinatol. [Internet]. 2017 [citado en 2019 Jun. 21];44(3):553–66. Disponible en: https://doi.org/10.1016/j.clp.2017.05.008.

Raiskila S, Lehtonen L, Tandberg BS, Normann E, Ewald U, Caballero S, et al. Parent and nurse perceptions on the quality of family-centred care in 11 European NICUs. Aust Crit Care. [Internet].2016 [citado en 2019 Jun. 21];29(4):201–9. Disponible en: https://www.sciencedirect.com/science/article/abs/pii/S1036731416300844

Lima VF de. Mazza VA. Necessidades de informações das famílias sobre saúde. Texto context enferm. 2019 [citado en 2020 Ene. 10];28:1–17. Disponible en: https://doi.org/10.1590/1980-265x-tce-2017-0474.

Feeley N, Waitzer E, Sherrard K, Boisvert L, Zelkowitz P. Fathers’ perceptions of the barriers and facilitators to their involvement with their newborn hospitalised in the neonatal intensive care unit. J Clin Nurs. [Internet].2013[citado en 2019 Sep. 21];22(3):521–30. Disponible en: https://doi.org/10.1111/j.1365-2702.2012.04231.x.

Vazquez V, Cong, X. Parenting the NICU infant : A meta-ethnographic synthesis. Int J Nurs Sci. [Internet]. 2014[citado en 2019 Jun. 21];1(3):281–90. Disponible en:http://dx.doi.org/10.1016/j.ijnss.2014.06.001.

Mackley A. Health Literacy Among Parents of Newborn Infants Amy. Adv Neonatal Care. [Internet]. 2016 [citado en 2019 Sep. 11];16(4):283–8. Disponible en: https://doi.org/10.1097/ANC.0000000000000295.

Skeens K, Logsdon MC, Stikes R, Ryan L, Sparks K, Hayes P. Health Literacy and Preferences for Sources of Child Health Information of Mothers With Infants in the Neonatal Intensive Care Unit. Adv Neonatal Care. [Internet]. 2016[citado en 2019 Sep. 21];16(4):308–14. Disponible en: https://doi.org/10.1097/ANC.0000000000000280.

Nutbeam D, McGill B, Premkumar P. Improving health literacy in community populations: A review of progress. Health Promot Int. 2018 [citado en 2019 Sep. 21];33(5):901–11. Disponible en: https://doi.org/10.1093/heapro/dax015.

Kim UO, Basir MA. Informing and educating parents about the risks and outcomes of prematurity. Clin Perinatol. [Internet].2014 [citado en 2019 Sep. 21];41(4):979–91. Disponible en: https://doi.org/10.1016/j.clp.2014.08.015.

Orr, T, Campbell-Yeo, M, Benoit, B, Hewitt, B, Stinson, J, McGrath P. Smartphone and Internet Preferences of Parents. Adv Neonatal Care [Internet]. 2017 [citado en 2019 Sep. 21];17(2):131–8. Disponible en: https://doi.org/10.1097/anc.0000000000000349.

Williams KG, Patel KT, Stausmire JM, Bridges C, Mathis MW, Barkin JL. The Neonatal Intensive Care Unit : Environmental Stressors and Supports. Int J Environ Res Public Health [Internet].2018 [citado en 2019 Sep. 21];15(1):60. Disponible en: https://doi.org/10.3390/ijerph15010060.

Alegría DAH, Boscardin C, Poncelet A, Mayfield C, Wamsley M. Using tablets to support self-regulated learning in a longitudinal integrated clerkship. Med Educ Online [Internet].2014 [citado en 2019 Sep. 21];19(1):1–7.Disponible en: https://doi.org/10.3402/meo.v19.23638.

Lebel V, Héon M, Juneau AL, Collette K, Feeley N. The development of a digital educational program with parents of preterm infants and neonatal nurses to meet parents educational needs. J Neonatal Nurs. [Internet].2020 [citado en 2020 Sep. 10];1-6. Disponible en: https://doi.org/10.1016/j.jnn.2020.06.004.

Siani, S., Dol, J., & Campbell-Yeo M. Impact of Parent-Targeted eHealth on Parent and Infant Health Outcomes. J Perinat Neonatal Nurs. [Internet].2017 [citado en 2019 Sep. 21];31(4):332–40. Disponible en: https://doi.org/10.1097/jpn.0000000000000265.

Enlow E, Lorch SA, Gray MM. Health literacy of parents of very preterm infants at NICU admission and discharge : a prospective cohort study. J Perinatol. [Internet].2019 [citado en 2020 Feb. 13];39(6):866-75. Disponible en: http://dx.doi.org/10.1038/s41372-019-0340-y.

Richardson B, Dol J, Rutledge K, Monaghan J, Howie K, Boates T, et al. Evaluation of Mobile Apps Targeted to Parents of Infants in the Neonatal Intensive Care Unit : Systematic App Review. JMIR Mhealth Uhealth. [Internet].2019 [citado en 2020 Feb. 12];7(4):1–13. Available: https://doi.org/10.2196/11620.

Coughlin M. Transformative Nursing in NICU: Trauma-informed, age-appropriate care. New York: Springer Publishing; 2014.

caringessentials.net [Internet]. Boston: Caring Essentials; c2010 [acesso em 26 nov. 2020]. Disponível em: https://www.caringessentials.net/.

Sousa VD, Rojjanasrirat W. Translation, adaptation and validation of instruments or scales for use in cross-cultural health care research: A clear and user-friendly guideline. J Eval Clin Pract. [Internet].2011 [citado en 2019 Sep. 21];17(2):268–74. Disponible en: https://doi.org/10.1111/j.1365-2753.2010.01434.x.

Nora CRD, Zoboli E, Vieira MM. Validação por peritos: importância na tradução e adaptação de instrumentos. Rev Gaúcha Enferm. [Internet].2018 [citado en 2019 Nov. 16];38(3):1–9. Disponible en:https://doi.org/10.1590/1983-1447.2017.03.64851.

Lawshe CH. A Quantitative Approach To Content Validity. Pers Psychol. 1975;28(4):563–75.

Camargo, Brigido Vizeu; Justo AM. Tutorial para uso do software Iramuteq. Laboratório Psicol Soc da Comun e Cognição [Internet]. 2018 [citado en 2019 Sep. 14];1–32. Disponible en: http://www.iramuteq.org/documentation/fichiers/Tutorial IRaMuTeQ em portugues_17.03.2016.pdf.

Brazy JE, Anderson BM, Becker PT, Becker M. How parents of premature infants gather information and obtain support. Neonatal Netw. [Internet]. 2001[citado en 2019 Sep. 19];20(2):41–8. Disponible en:https://doi.org/10.1891/0730-0832.20.2.41.

Rouck S De, Leys M. Information needs of parents of children admitted to a neonatal intensive care unit: A review of the literature (1990 – 2008). Patient Educ Couns. [Internet]. 2009 [citado en 2019 Sep. 18];76(2):159–73. Disponible en: https://doi.org/10.1016/j.pec.2009.01.014.

Maramba I, Chatterjee A, Newman C. Methods of usability testing in the development of eHealth applications: A scoping review. Int J Med Inform [Internet]. 2019 [citado en 2020 Ene. 23];126:95-104. Disponible en: https://doi.org/10.1016/j.ijmedinf.2019.03.018.

Published
01-01-2022
How to Cite
[1]
Souto, N. et al. 2022. Quantum Caring for Parents: Translation and Adaptation of a Mobile Application into Portuguese. Global Nursing. 21, 1 (Jan. 2022), 504–544. DOI:https://doi.org/10.6018/eglobal.464751.
Issue
Section
ORIGINAL RESEARCH