“It’s something you don’t talk about": miscarriage testimonies on youtube
Abstract
Objective: To analyze the content of testimonial videos about pregnancy loss in Spanish on YouTube, so as to explore whether such narratives are framed in relation to the modern or postmodern biomedical logic of this experience as formulated by Frank and Bauman.
Methods: Systematic search of videos in Spanish from 2011 to May 2019, using the following inclusion criteria: contain the key words miscarriage or pregnancy loss in their title and have had more than 100,000 views on YouTube since their publication. To enable further content analysis, the videos were viewed to detail the characteristics of the publication channel in each case and to catalog their contents in terms of reasons for talking about the experience, the time chosen to tell the story, interaction with followers, the stages in the narrative, and the language used.
Results: We identified nine YouTubers that met the inclusion criteria, comprising a total of ten videos. Only two of the nine channels focused exclusively on motherhood. The stories are inscribed in a postmodern biomedical logic, due to the clear need to explain the traumatic event online, the recognition of the grief phase, and the limited use of survival language.
Conclusions: This study shows that the need to talk about the experience online is motivated by a decision to make the experience visible and offer support to other women. The results of this study may be useful to nursing professionals whose clinical practice involves caring for women who have suffered pregnancy loss.
Downloads
References
Castells M. La era de la información: economía, sociedad y cultura. Madrid: Siglo XXI, 2004.
Gooden R, Winefield H. Breast and prostate cancer online discussion boards: a thematic analysis of gender differences and similarities. J Health Psychol. 2007;12(1): 103-114.
Wentzer HS, Bygholm A. Narratives of empowerment and compliance: studies of communication in online patient support groups. Int J Med Inform. 2013;82(12):386–94.
Nath C, Huh J, Adupa AK, Jonnalagadda SR. Website sharing in online health communities: a descriptive analysis. J Med Internet Res. 2016; 18(1): e11.
Moravec M (ed.). Motherhood online. Cambridge: Cambridge Scholars Publishing, 2011.
Gillin P. The new influencers: A marketer's guide to the new social media. New Jesey: Linden Publishing, 2009
Walker LO, Mackert MS, Ahn J, Vaughan MW, Sterling BS, Guy S et al. e-Health and new moms: Contextual factors associated with sources of health information. Public Health Nurs. 2017;34(6):561-568.
Visa M, Crespo C. Madres en red. 2011. Madrid: Clave Intelectual, 2014
Reiheld A. The Event That Was Nothing: Miscarriage as a Liminal Event. J Soc Philos. 2015;46(1):9-26.
Michels TC, Tiu AY. Second trimester pregnancy loss. Am Fam Physician. 2007;76(9):10.
Worden JW. El tratamiento del duelo. Madrid: Paidós ibérica, 2013.
Frank A. The wounded storyteller. Body, illness, and ethics. Chicago: The University of ChicagoPress, 1995.
Bauman Z. Mortality, inmortality other life strategies. Stanford, CA: Stanford University Press,1992.
McCosker A. Blogging illness: recovering in public. M/C Journal. 2008;
(6). [Accedido 8 Noviembre 2019] Disponible en: http://journal.mediaculture.
org.au/index.php/mcjournal/article/view%20Article/104/0
Ressler PK, Bradshaw YS, Gualtieri LCh & Chui.KKH. Communicating the experience of chronic pain and illness through blogging. J Med Internet Res. 2012;14(5): e143.
Coll-Planas G, Visa M. The wounded blogger: analysis of narratives by
women with breast cancer. Sociol Health Ill. 2016;38(6):884-898.
Naslund JA, Grande SW, Aschbrenner KA, Elwyn G. Naturally occurring peer support through social media: the experiences of individuals with severe mental illness using YouTube. PLOS one. 2014;9(10):e110-171
Isika NU, Mendoza A, Bosua R. ”The use of social media by adults with
chronic illness: analysing the support mechanisms of four social media platforms”. Australasian Conference on Information Systems, 2016. [Accedido 8 Noviembre 2019] Disponible en: https://www.researchgate.net/publication/310462952_The_use_of_social_media_by_adults_with_chronic_illness_analysing_the_support_mechanisms_of_four_social_media_platforms
Sani L, Laurenti Dimanche AC, Bacqué MF. Angels in the Clouds: Stillbirth and Virtual Cemeteries on 50 YouTube Videos. Journal of Death and Dying. 2019: 0030222818824732.
Kelly-Hedrick M, Grundberg PH, Brochu F, Kekowithz P. “It’s totally okay
to be sad, but never lose hope”: content analysis of infertility-related videos on
youtube in relation to viewer preferences. J Med Internet Res.2018;20(5):e10199
Mullin A. Early pregnancy losses: multiple meanings and moral considerations. Journal of Social Philosophy. 2015;46(1):27-43.
Porter L. Miscarriage and Person‐Denying. J Soc Philos. 2015;46(1): 59-79.
Lindemann H. Miscarriage and the stories we live by. J Soc Philos. 2015; 46(1): 80-90.
Lashari BH, Chan V, Shoukat U, Arslan A, Barry H, Raza A et al. YouTube as a source of patient education in idiopathic pulmonary fibrosis: a media content analysis. J Community Hosp Intern Med Perspect. 2019;9(2):98-102.
Karas J, Karner TX. Understanding the diabetic body‐self. Qualitative Health Research. 2005: 15, 8, 1086– 104.
Thomas-MacLean R. Understanding breast cancer stories via Frank’s narrative types. Soc Sci Med. 2004;58(9):1647–57.
Sumalla EC, Ochoa C, Blanco I. “Pero, ¿estoy curada?’. Narración de restitucion y discurso biomedico en breast cáncer”. En Martınez-Hernandez A, Massana I, Digiacomo SM (eds). Evidencias y narrativas en la atención sanitaria. Una perspectiva antropologica. Tarragona, 2013: 137-150
Nosek M, Kennedy HP, Gudmundsdottir M. Chaos, restitution and quest: one woman’s journey through menopause. Sociol Health Ill. 2012; 34(7): 994–1009.
Smith B, Sparkes AC. Changing bodies, changing narratives and the consequences of tellability: a case study of becoming disabled through sport. Sociol Health Ill. 2008;30(2):217–36.
Lok IH, Neugebauer R. Psychological morbidity following miscarriage. Best Pract Res Clin Obstet Gynaecol. 2007 ;21(2):229-47.
Klier CM, Geller P, Ritsher JB. Affective disorders in the aftermath of miscarriage: a comprehensive review. Arch Womens Ment Health. 2002;5(4):129-49.
The works published in this magazine are subject to the following terms:
1. The Publications Service of the University of Murcia (the publisher) preserves the copyright of the published works, and encourages and allows the reuse of the works under the license for use stated in point 2.
© Servicio de Publicaciones, Universidad de Murcia, 2011 (© Publications Service, University of Murcia, 2011)
2. The works are published in the electronic edition of the journal under Creative Commons Reconocimiento-NoComercial-SinObraDerivada 3.0 España(texto legal) “ a Attribution-NonCommercial-NoDerivatives 3.0 Spain license (legal text)”. They can be copied, used, broadcasted, transmitted and publicly displayed, provided that: i) the authorship and original source of their publication (journal, publisher and URL) are cited; (ii) are not used for commercial purposes; iii) the existence and specifications of this license is mentioned.
3. Conditions of self-archiving. Authors are allowed and encouraged to electronically disseminate the pre-print (pre-reviewed ) and / or post-print (reviewed and accepted for publication) versions of their works prior to publication, as it ensures a wider circulation and dissemination which may lead to a possible increase in its mention and a higher scope among the academic community. RoMEO color: green.