Women with high level of education, victims of the care of people with Alzheimer's
Abstract
The aim of this job is to know the existing relationship between the task of caring patients with Alzheimer's disease, caregivers' gender and their level of academic studies. Descriptive study, 69 persons diagnosed with Alzheimer’s disease and their respective familiar caregivers as subjects of the study. Age, gender, academic level, burden, depression, anxiety level, quality of life and social loneliness have been measured in caregivers. Age, gender, dependency level and neuropsychological state have been measured in patients. Data collection was done in 2016. Logistic regression analysis was performed. Caregivers with high levels of academic studies suffer more burden, being women in their majority. They are more likely to present social loneliness and higher levels of anxiety and a worse quality of life than men. The burden may be due to a greater number of responsibilities to respond to, and to the inability to combine it with the role of caregiver. We can conclude that women become victims of caring Alzheimer' patients.
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References
Kirsten MF, Jodie IR, Collen JM et al. The Prevalence and Incidence of Dementia Due to Alzheimer´s Disease: a Systematic Review and Meta-Analysis. Can J Neurol Sci. 2016; 43: S51-82. DOI:10.1017/cjn.2016.36
Garre-Olmo. Epidemiología de la enfermedad de Alzheimer y otras demencias. Rev Neurol. 2018; 66:377-386. DOI: https://doi.org/10.33588/rn.6611.2017519
American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 5th ed. Washington, DC: American Psychiatric Association; 2013.
European Commision. Informal care in Europe. Exploring Formalization, Availability and Quality. Luxembourg: Publications Office of the European Union. 2018. DOI: 10.2767/78836
Ornstein K, Gaugler JE. The problem with "problem behaviors": a systematic review of the association between individual patient behavioral and psychological symptoms and caregiver depression and burden within the dementia patient-caregiver dyad. Int Psychogeriatr. 2012;24(10):1536-52. DOI: 10.1017/S1041610212000737
Seidel D, Thyrian JR. Burden of caring for people with dementia-comparing family caregivers and professional caregivers. A descriptive study. J Multidiscip Healthc. 2019; 12:655-663. DOI: http://doi.org/10.2147/JMDH.S209106
Eby DW, Molnar LJ, Kostyniuk LP. Characteristic of informal caregivers who provide transportation assistance to older adults. PLoS One. 2017; 12 (9): e0184085. DOI: https://doi.org/10.1371/journal.pone.0184085
Del-Pino-Casado R, Pastor-Bravo MM, Palomino-Moral PA, Frías-Osuna A. Gender differences in primary home caregivers of older relatives in a Mediterranean environment: A cross-sectional study. Archives of Gerontology and Geriatrics. 2017; 69:128-133. DOI: https://doi.org/10.1016/j.archger.2016.11.012
Sutcliffe C, Giebel C, Bleijlevens M, Lethin C, Stolt M, Saks K, et al. Caring for a person with Dementia on the margins of long-Term Care: A perspective on Burden From 8 European Countries. J Am Med Dir Assoc. 2017;18(11):967-973. DOI: http://dx.doi.org/10.1016/j.jamda.2017.06.004
Liu S, Li C, Shi Z, Wang X, Zhou Y, Liu S, et al. Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer´s disease caregivers in China. J Clin Nurs. 2017; 26(9-10):1291-1300. DOI: 10.1111/jocn.13601
Canonici AP, Andrade LP, Gobbi S, Santos-Galduroz RF, Gobbi LT, Stella F. Functional dependence and caregiver burden in Alzheimer's disease: a controlled trial on the benefits of motor intervention. Psychogeriatrics. 2012;12(3):186-92. DOI: 10.1111/j.1479-8301.2012.00407.x.
Cheng S-T, Lam LCW, Kwok T, Ng NSS, Fung AWT. Self-efficacy Is Associated With Less Burden and More Gains From Behavioral Problems of Alzheimer’s Disease in Hong Kong Chinese Caregivers. The Gerontologist. 2012;53(1):71-80. DOI: 10.1093/geront/gns062.
Dauphinot V, Delphin-Combe F, Mouchoux C, Dorey A, Bathsavanis A, Makaroff Z, et al. Risk factors of caregiver burden among patients with Alzheimer's disease or related disorders: a cross-sectional study. J Alzheimers Dis. 2015;44(3):907-16. DOI: 10.3233/JAD-142337.
Jones RW, Romeo R, Trigg R, Knapp M, Sato A, King D, et al. Dependence in Alzheimer's disease and service use costs, quality of life, and caregiver burden: the DADE study. Alzheimers Dement. 2015;11(3):280-90. DOI: 10.1016/j.jalz.2014.03.001.
Kang HS, Myung W, Na DL, Kim SY, Lee JH, Han SH, et al. Factors associated with caregiver burden in patients with Alzheimer's disease. Psychiatry Investig. 2014;11(2):152-9. DOI: 10.4306/pi.2014.11.2.152.
Hsu TJ, Tsai HT, Hwang AC, Chen LY, Chen LK. Predictors of non-pharmacological intervention effect on cognitive function and behavioral and psychological symptoms of older people with dementia. Geriatr Gerontol Int. 2017; Suppl 1: 28-35. DOI: 10.1111/ggi.13037
Tretteteig S, Vatne S, Rokstad AM. The influence of day care centres designed for people with dementia on family caregivers-a qualitative study. BMC Geriatr. 2017; 17(1): 5. DOI 10.1186/s12877-016-0403-2
García-Alberca JM, Lara JP, Garrido V, Gris E, Gonzalez-Herrero V, Lara A. Neuropsychiatric Symptoms in Patients With Alzheimer´s Disease: the Role of Caregiver Burden and Coping Strategies. Am J Alzheimers Dis Other Demen. 2014; 29(4): 354-361. DOI: 10.1177/1533317513518649
Iavarone A, Ziello AR, Pastore F, Fasanaro AM, Poderico C. Caregiver burden and coping strategies in caregivers of patients with Alzheimer's disease. Neuropsychiatr Dis Treat. 2014;10:1407-13. DOI: 10.2147/NDT.S58063.
Shikimoto R, Sado M, Ninomiya A, Yoshimura K, Ikeda B, Baba T, et al. Predictive factors associated with psychological distress of caregivers of people with dementia in Japan: a cross-sectional study. Int Psychogeriatr. 2018; 30 (8): 1089-1098. DOI:10.1017/S1041610217002289
Elmstahl S, Dahlrup B, Ekström H, Nordell E. the association between medical diagnosis and caregiver burden: a cross-sectional study of recipients of informal support and caregivers from the general population study “Goog Aging in Skane”, Sweden. Aging Clin Exp Res. 2018; 30(9): 1023-1032. DOI: https://doi.org/10.1007/s40520-017-0870-0
Yikilkan H, Aypak C, Gorpelioglu S. Depression, anxiety and quality of life in caregivers of long-term home care patients. Arch Psychiatr Nurs. 28. United States: 2014 Elsevier Inc; 2014. p. 193-6. DOI: 10.1016/j.apnu.2014.01.001.
Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20(6):649-55.
Beck AT, Ward CH, Mendelson M, Mock J, Erbaugh J. An inventory for measuring depression. Arch Gen Psychiatry. 1961;4:561-71.
Beck AT, Epstein N, Brown G, Steer RA. An inventory for measuring clinical anxiety: psychometric properties. J Consult Clin Psychol. 1988;56(6):893-7. DOI: 10.1037/0022-006X.56.6.893.
Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992;30(6):473-83.
Pinel Zafra M, Rubio Rubio L, Rubio Herrera R. Un instrumento de medición de la soledad social. Escala ESTE II Madrid: Universidad de Granada; 2009 [Available from: http://envejecimiento.csic.es/documentos/documentos/rubio-soledad-este2.pdf.] (Consulted: 01-08-2019)
Pfeiffer E. A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. J Am Geriatr Soc. 1975;23(10):433-41.
Mahoney FI, Barthel DW. Functional evaluation: the Barthel index. Md State Med J. 1965;14:61-5.
Folstein MF, Folstein SE, McHugh PR. "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12(3):189-98.
Mosquera I, Larrañaga I, Del Río M, Calderón C, Machón M, García MM. Desigualdades de género en los impactos del cuidado informal de mayores dependientes en Gipuzkoa: Estudio CUIDAR-SE. Rev Esp Salud Públi¬ca.2019;93: 28 de enero e201901002.
Losada A, Márquez-González M, Vara-García C, Gallego-Alberto L, Romero-Moreno R, Pillemer K. Ambivalence and guilt feelings: two relevant variables for understanding caregivers´depressive symptomatology. Clin Psychol Psychother. 2017; 1-7. DOI: https://doi.org/10.1002/cpp.2116
Dalpai D, Castro R, Camozzato A. Effect of caregiver characteristics on dementia management strategies. Dement Neuropsychol. 2016; 10(2): 143-147. DOI:10.1590/S1980-5764-2016DN1002010
Toribio-Díaz ME, Medrano-Martínez V, Moltó-Jorda JM, Beltran-Blasco I. Rol de Cuidadores informales de los pacientes con demencia en la provincia de Alicante, descripción de sus características. Neurología. 2013; 28(2):95-102 DOI: 10.1016/j.nrl.2012.03.010
Khoo SA, Chen TY, Ang YH, Yap P. The impact of neuropsychiatric symptoms on caregiver distress and quality of life in persons with dementia in an Asian tertiary hospital memory clinic. Int Psychogeriatr. 25. England2013. p. 1991-9. DOI: https://doi.org/10.1017/S1041610213001518.
Miller LA, Mioshi E, Savage S, Lah S, Hodges JR, Piguet O. Identifying cognitive and demographic variables that contribute to carer burden in dementia. Dement Geriatr Cogn Disord. 2013;36(1-2):43-9. DOI: 10.1159/000347146.
Conway ER, Watson B, Tatangelo G, McCabe M. Is it all bleak? A systematic review of factors contributing to relationship change in dementia. Int Psychogeriatr. 2018; 30(11): 1619-1637. DOI:10.1017/S1041610218000303
Rosdinom R, Zarina MZ, Zanariah MS, Marhani M, Suzaily W. Behavioural and psychological symptoms of dementia, cognitive impairment and caregiver burden in patients with dementia. Prev Med. 2013;57 Suppl:S67-9. DOI: 10.1016/j.ypmed.2012.12.025.
Turró-Garriga O, Garre-Olmo J, Vilalta-Franch J, Conde-Sala JL, de Gracia Blanco M, López-Pousa S. Burden associated with the presence of anosognosia in Alzheimer's disease. Int J Geriatr Psychiatry. 2013;28(3):291-7. DOI: 10.1002/gps.3824.
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