Quality of life in institutionalized adults with cerebral palsy
Abstract
Introduction: Cerebral palsy is considered a group of permanent developmental disorders that cause
limitations in daily activity. One of the complications in people with cerebral palsy is the decrease in
quality of life.
Objective: The objective of this study is to know the quality of life for institutionalized adults with
infantile cerebral palsy and to know if there are differences in the quality of life index based on functional
characteristics.
Method: Cross-sectional descriptive observational study in institutionalized adults with infantile cerebral
palsy performed in the APCA and ASPROPACE centers between March and September 2017. The San
Martín questionnaire was administered to measure the Quality of Life, Gross motor classification
system, Barthel questionnaire, Scale CFCS to measure motor function, physical dependence, level of
communication and relate them with sociodemographic and clinical variables. The selection of the
participants was carried out by random stratified sampling. It was approved by the centers' addresses.
Results: Participants were 39 people with an average age of 32.54 years. The overall average score of
the San Martin questionnaire was 102.97 points. The most affected dimensions were material wellbeing,
personal development and social incluison. No statistical significance was obtained in the overall score of the questionnaire based on the secondary variables.
Conclusions: The results of this study have shown that the quality of life of adults with cerebral palsy in
the subjects studied is good.
Downloads
References
Gulati S, Sondhi V. Cerebral Palsy: An Overview. Indian J Pediatr. 2018 Nov;85(11):1006-1016. doi: 10.1007/s12098-017-2475-1. Disponible en:
https://link.springer.com/article/10.1007%2Fs12098-017-2475-1
Wimalasundera N, Stevenson VL. Cerebral palsy. Pract Neurol. 2016 Jun;16(3):184-94. doi: 10.1136/practneurol-2015-001184. Disponible en: https://pn.bmj.com/content/16/3/184.long
Colver A, Rapp M, Eisemann N, Ehlinger V, Thyen U, Dickinson HO, Parkes J, Parkinson K, Nystrand M, Fauconnier J, Marcelli M, Michelsen SI, Arnaud C. Selfreported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis. Lancet. 2015 Feb 21;385(9969):705-16. doi: 10.1016/S0140-6736(14)61229-0. Disponible en
https://www.sciencedirect.com/science/article/pii/S0140673614612290?via%3Dihub
Badía Corbella, M., Carrasco Trenado, J., Orgaz Baz, M. B., & Escalonilla García, J.
M. (2018). Calidad de vida percibida por personas adultas con discapacidades del
desarrollo versus la informada por profesionales Siglo Cero Rev Española sobre Discapac Intelect. 2016;47(1):7. Disponible en: http://revistas.usal.es/index.php/0210-1696/article/view/scero20161721
Verdugo MA, Gómez LE, Arias B, Navas P, Schalock RL. Measuring quality of life in people with intellectual and multiple disabilities: validation of the San Martín scale. Res Dev Disabil. 2014 Jan;35(1):75-86. doi:10.1016/j.ridd.2013.10.025. Disponible en:
https://www.sciencedirect.com/science/article/pii/ S0891422213004691?via%3Dihub
Fabricio Espinoza Ortiz. Aproximacion Teorica Al Concepto de Calidad de Vida.2014;No14,2014:331–47. Disponible en: https://revistaselectronicas.ujaen.es/index.php/rae/article/view/1801/1559
Jiang B, Walstab J, Reid SM, Davis E, Reddihough D. Quality of life in Young adults with cerebral palsy. Disabil Health J. 2016 Oct;9(4):673-81. doi:10.1016/j.dhjo.2016.04.006. Disponible en: https://www.sciencedirect.com/
science/article/pii/S1936657416300450?via%3Dihub
Scherer R, Billinger M, Wagner J, Schwarz A, Hettich DT, Bolinger E, Lloria Garcia M, Navarro J, Müller-Putz G. Thought-based row-column scanning communication board for individuals with cerebral palsy. Ann Phys Rehabil Med. 2015 Feb;58(1):14-22. doi:10.1016/j.rehab.2014.11.005. Disponible en:
https://www.sciencedirect.com/science/article/pii/S1877065714018430?via%3Dihub
Martin J-F. Los factores definitorios de los grandes grupos de edad de la población: tipos, subgrupos y umbrales. Geo Crítica / Scripta Nova. Revista electrónica de geografía y ciencias sociales. Barcelona: Universidad de Barcelona. p. vol. IX, núm.190. Disponible en: http://www.ub.edu/geocrit/sn/sn-190.htm
Cid-Ruzafa J, Damián-Moreno J. Valoración de la discapacidad física: el indice de Barthel. Rev Esp Salud Publica. 1997;71(1):127–37. Available from:
http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S1135-57271997000200004
Compagnone E, Maniglio J, Camposeo S, Vespino T, Losito L, De Rinaldis M, et al. Functional classifications for cerebral palsy: Correlations between the gross motor function classification system (GMFCS), the manual ability classification system (MACS) and the communication function classification system (CFCS). Res Dev Disabil. 2014;35(11):2651–7. Disponible en: http://dx.doi.org/10.1016/j.ridd.2014.07.005.
Andrea E, Mejía C, Cristina A, Ávila Q, Milena D, Vidal D. Escala Gross Motor Function Measure . Una revisión de la literatura. 2014;2(8):11–21. Disponible en: https://www.researchgate.net/publication/304662448_Escala_Gross_Motor_FunctionMeasure_Una_revision_de_la_literatura
Ley Orgánica 3/2018, de 5 de diciembre, de Proteccion de Dato Personales y garantia de los derechos digitales. Disponible en: https://boe.es/diario_boe/txt.php?id=BOE-A-2018-16673
Ross SM, MacDonald M, Bigouette JP. Effects of strength training on mobility in adults with cerebral palsy: A systematic review. Disabil Health J. 2016 Jul;9(3):375-84. doi: 10.1016/j.dhjo.2016.04.005. Disponible en:
https://www.sciencedirect.com/science/article/pii/S1936657416300449?via%3Dihub
Braccialli, L. M., Almeida, V. S., Sankako, A. N., Silva, M. Z., Braccialli, A. C.,
Carvalho, S. M., & Magalhães, A. T. (2016). Translation and validation of the Brazilian
version of the Cerebral Palsy Quality of Life Questionnaire for Children–child report. Jornal de pediatria, 92(2), 143-148. Disponible en: https://www.sciencedirect.com/science/article/pii/S0021755715001722?via%3Dihub
Pashmdarfard M, Amini M, Badv RS, Namazi NG, Rassafiani M. Does parent report gross motor function level of cerebral palsy children impact on the quality of life in these children? Iran J Child Neurol. 2017;11(4):52–7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/29201124
Hickey M, Moore P. Quality of life in adolescents with cerebral palsy. Lancet [Internet]. 2015;385(9969):670–2. Available from: http://dx.doi.org/10.1016/S0140-6736(14)61599-3
Colver, A., Rapp, M., Eisemann, N., Ehlinger, V., Thyen, U., Dickinson, H. O., ... & Marcelli, M. (2015). Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis. The Lancet, 385(9969), 705-716. Disponible en:
https://www.sciencedirect.com/science/article/pii/S0140673614612290?via%3Dihub
Park TS, Dobbs MB, Cho J. Evidence Supporting Selective Dorsal Rhizotomy for Treatment of Spastic Cerebral Palsy. Cureus. 2018 Oct 19;10(10):e3466. doi:10.7759/cureus.3466. Disponible en: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6300384/
The works published in this magazine are subject to the following terms:
1. The Publications Service of the University of Murcia (the publisher) preserves the copyright of the published works, and encourages and allows the reuse of the works under the license for use stated in point 2.
© Servicio de Publicaciones, Universidad de Murcia, 2011 (© Publications Service, University of Murcia, 2011)
2. The works are published in the electronic edition of the journal under Creative Commons Reconocimiento-NoComercial-SinObraDerivada 3.0 España(texto legal) “ a Attribution-NonCommercial-NoDerivatives 3.0 Spain license (legal text)”. They can be copied, used, broadcasted, transmitted and publicly displayed, provided that: i) the authorship and original source of their publication (journal, publisher and URL) are cited; (ii) are not used for commercial purposes; iii) the existence and specifications of this license is mentioned.
3. Conditions of self-archiving. Authors are allowed and encouraged to electronically disseminate the pre-print (pre-reviewed ) and / or post-print (reviewed and accepted for publication) versions of their works prior to publication, as it ensures a wider circulation and dissemination which may lead to a possible increase in its mention and a higher scope among the academic community. RoMEO color: green.
